EP.6 Invisible Illness, Misdiagnosis and the Power of Patient Advocacy with Tilly Rose

In this episode of Owning Space, author and patient advocate Tilly Rose shares her journey through years of misdiagnosis and living as a long-term medical mystery. We explore invisible illness, systemic failure in healthcare, and the moment Tilly was nearly discharged without answers. Through community, persistence and patient advocacy, Tilly ultimately found life-saving diagnoses and a powerful new voice in women’s health. This is a conversation about being believed, reclaiming agency, and why advocacy can be lifesaving.

Listen to full episode here.