In this episode of Owning Space, author and patient advocate Tilly Rose shares her journey through years of misdiagnosis and living as a long-term medical mystery. We explore invisible illness, systemic failure in healthcare, and the moment Tilly was nearly discharged without answers. Through community, persistence and patient advocacy, Tilly ultimately found life-saving diagnoses and a powerful new voice in women’s health. This is a conversation about being believed, reclaiming agency, and why advocacy can be lifesaving.
Listen to full episode here.
